I'm up early after a mostly sleepless night. Abby's GI appointment yesterday went well. We saw the Dr., nutritionist, and had an x-ray. Jeff was able to go, which was really nice.
Abby is really struggling and will almost certainly begin TPN. Her weight dropped 2 pounds. She's grown 3" in 7 months though. She is 5 feet tall now. She seems so long, but that's actually only 10th percentile for height. She was >3% for weight. Her body mass index was only 11.5. They gave me a lot of other numbers that I didn't quite understand, but the bottom line is, she's too thin.
The Dr. still believes he feels a mass in her belly and is reviewing her CT, ultrasound, and x-ray with the radiologist to figure it out.
She will have to go in the hospital for a while to get TPN going, then hopefully we can work on it at home. I should hear more about the plan today.
At first, I was relieved to have some help with her. It's very difficult being solely responsible for her care. I want her stronger and healthier and I'm not getting there with what we are doing. Having her in the hospital where other people see her too seemed like a good idea.
This morning, I'm thinking of packing for the hospital and getting the kids ready for me to be gone. I'm quickly remembering how hard it is to be away from home. The good news is, we are treating Abby before she is sick this time. That is an answer to prayer. I don't think she's strong enough for even minor illnesses at the moment. Getting some weight on her will go a long way in helping her recover.
I should go, this could be a very long day.
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