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Thursday, June 17, 2010

So much happens everyday in the life of raising children with disabilities, I really shouldn't wait so long to hit the computer keys.

Now it's time to catch up! 

Happy News first:

Jeff's been home a few times, and we are all doing great.  I am so far beyond surprised that I can handle this at all.  I thought this time apart from Jeff would be about surviving, like some sort of wilderness trek involving heavy loads, exhausted days, and conservation of provisions.  My friend reminded me early on that our God is not the God of just surviving, He is the God of thriving.  It is a heavy load,  and I am exhausted at the end of the day, but it's that good kind of tired that tells me I've accomplished something that day.  The girls are taken care of, the house is usually pretty clean, I am learning to ask for help when I need it.  All in all, I miss our family together, and I eagerly wait for the day when we are, but I appreciate what God is showing me about Him in this time.

We are hosting Vacation Bible School at our church this week.  I teach the special needs class.  I can't tell you how much I love these kids.  They are so smart and funny.  We laugh and have fun and learn about God.  I love this class because when I first started in church, I said repeatedly that I would never want to work with special needs children.  I felt like I had enough of that at my own home, I definitely didn't want to spend whatever free time I had with other special needs kids.  Silly Rabbit.  I'm not sure why we even think at all---God has his own plans, and my heart changed so fast in that area.  I love my kids.  Not the I heart chocolate kind of love, real love that stays even when they are gone.  These kids are a gift and I encourage any of you to give special needs ministry a try.  They need to know God loves them, no matter what as much as you and I do, maybe even more.  Spend a few minutes getting to know a special needs child, you will be blessed.



My precious daughter Sarah turned 10 Sunday.  Ten years.  She is my baby and I still see her walking off to kindergarten with her little back pack on.  It goes fast.  She's at sleep away girl scout camp right now.  I am not the kind of mama that deals well with her little pumpkin sleeping away from home with people I don't even know, so this has been a challenge for me.  I miss her  a lot, but I am excited for her.  I can't wait to hear all about it.



I'm sure there is much, much more but those are the highlights. 

Now the other news, I'm not going to call it bad news because the bible says that all things work together for the good of those who love Him and I do, so I'm sure there is a reason for everything. 

One week before the last day of school, Emily had two seizures at school.  Emily had one seizure last summer, none before and none since.  She was at school when she laughed and then had a 6 minute seizure, followed by Todds paralysis, which looked like a stroke with the right side of her body paralyzed.  I was afraid that she had had a stroke, but Todds paralysis occurs only with seizures and thankfully, always resolves quickly on its own (she was almost completely back to normal before we left the hospital).  She had a second seizure as the ambulance arrived.  Getting the phone call that something is wrong with your child is awful.  Even though I know most seizures look scarier than they are, even though I know she's going to be alright; I had to see her, touch her, feel her warm skin on mine, watch her open her eyes and know she is still there.  Then I can breathe again. 

We get her EEG results today and decide where to go from there.  I don't want seizures in my life.  I want to stomp my feet and cross my arms and say enough is enough.  We do not need another thing to think about, medicate, deal with.  I could stomp my feet and be a baby, but it's not going to change anything.  I just trust that we will handle this and Emily will be safe. 

I just realized I have one more good thing to add to the list, it's 8:39 am and Abby is still asleep!  Wooo hoooo!

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