I wanted to be able to say that the clouds parted and the sun shined down on Abby the second we started her new formula, but I can't. It was unrealistic to even want that. Kids like mine don't transition to new things well and Abby is no exception.
The first night I started it, I immediately had to slow it down to 40. She seemed to have stomach pain and was up all night. The next day she had some belly swelling and then an episode where she got really pale and started sweating profusely. Today has been tough too, but a little better than yesterday.
She had her GI appointment this morning. Incredibly, she's gained 1 1/2 pounds. That's great news for her and the first time she hasn't lost weight in 6 months! Thank you God!! She did have a cellulitis at her g-tube site that needs to be treated with an antibiotic. It's red, puffy and bleeding some. I've also noticed a little blood in her belly when we vent the tube this week. They think it's all related to the site infection.
We got lot's of blood work and a belly film too. Hopefully it all looks good.
Overall, we're going to keep trying with the new formula, stick with the same IV fluids this time,and increase her Zofran to 4 times a day scheduled instead of as needed. We are also going to try a different venting technique to try to help with the air in her tummy.
Please pray with us that this blenderized formula is something she's able to tolerate and that she'll finally feel a little better! :)
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