Huh?

Abby made it through her first night in the hospital just fine.

She actually did very well last night. She slept almost the whole night.

She had a very bad day yesterday. Her nausea was severe and she seemed to be in pain. The doctors here all began evaluating her, and I thought they were very good. The peds attending, resident, GI, and radiologist all reviewed her scans together first thing.

Shockingly, the 'mass' in her abdomen is her spine. We know it curves in (lordosis), but she is so thin now, her spine is only 1/2" from the surface of the abdomen. The ligament or scar tissue we felt was actually the j tube palpable from the belly. I'm not sure what that means yet. It could have some affect on motility. It isn't causing a blockage, but could be causing low back pain. She complains of significant belly pain, which could actually be spine, since it's right there. There were no fractures in the spine though.

We changed her formula immediately. She's tolerating the new one marginally well. Her nausea is worse than ever, but she needs to get some weight on her before we can expect much improvement.

TPN started tonight, for which I can only be grateful. If we chose not to, we would be making a decision about her life that I am not prepared to make. We were asked about how much we want to do for her at this point- for the first time. We don't want her to suffer, but I feel at peace that she is in Gods hands. She can't starve when we can help her. So, we keep trying.


TPN hanging



Giving daddy a kiss

I'm not sure how long she will be here, but I do have one more thing to add to our prayer list. We need our NC Medicaid to go through. We have insurance, but we need Medicaid also to bring her home on TPN. It's very close to being done, but she needs it now :)

Thanks for keeping my sweet girl close to your hearts and in your prayers.