Emily

We have had a tough week, but hanging in here at home. We finally got a clearer picture of her problem Sunday night. She really just has a common cold, but it's been lots of trouble.

She's struggled with feeds big time. This is a very typical symptom of her being sick, but just bad timing. She's lost two pound and that drove the GI drainage way up, and our ability to replace fluids way down. After two doctor visits and many calls, we have carefully managed her here. She might be on the upswing now (maybe?...hopefully?). She's still not back up to full feeds, but her labs looked okay today, so I'm doing better than I thought.

I'm pretty tired because she's been up coughing all night for the last two nights. She had a belly x-ray this morning, but not a chest film. If she keeps this up we may need to call peds again. She had formula in her belly yesterday, so we questioned the tube placement, but it was fine, so her tummy is just slow from being sick and backing up.

We are still praying she can start school with her friends, and that we find a school program that works for her. So far, she doesn't have a school assignment which is another thing to deal with.

I'm ready for this summer to be over. As much as I was looking forward to it, it's time to move on.

Those words clench my heart as I'm still missing Abby more with every breath.