Sarah and Em

My cool girl, Sarah! She learned to play this while Emily was in the hospital. It's not that easy :). I love seeing her work hard to learn new things, and I love her heart for all kinds of music. She's a sweetie!

http://m.youtube.com/watch?feature=plcp&v=aJYhcKD-6DA

Emily is doing very well. After a little GI bleeding last week, which was probably just tube irritation or residual inflammation from the c-diff, and more trouble with the pump and air, she's had a good weekend. GI added Prilosec and carafate to her med list, and I think that is finally going to be what she needed to really turn around. She was putting out 600-800cc's a day from the g-tube, and we weren't putting that much back in, so she was always somewhat dehydrated. The Prilosec is an acid reducer, and immediately the g-tube drainage dropped in half. That is so much more manageable! The Carafate coats the lining, which helps with irritation, so she feels much, much better. Now we add two more to this to the rest of these. This is only her morning meds. I sure will be glad when she's back to normal!




2 more weeks until school starts, and she just might make it! I am thrilled! Her dental was a no-go. The pediatrician said it was too risky with her weight and GI status, but we'll try for September. We still have to find a school for her, but it will come. I hope.

I was able to spend Saturday with my mom, aunts, uncles, and family I've never met at a family reunion. It was a wonderful break from the house, and so much fun to be with family.




All things considered, we are doing great, which is such a nice thing to be able to say! Thank God for these days when all is well.