So Busy!

This is going to be a quick post and I'll get right to the point.  I feel like my head is going to pop right off my shoulders.  Man, what a tough, infomation-packed 24 hours.

Before we left the hospital, Abby began having an increase in nausea and residuals.  Both have further increased today.  We are managing it for now, but it makes me nervous.

Leaving the hospital was wonderful, even though it's scary.  Coming home was the right thing to do.

Abby, we're going home!



 

Last check around our temporary home



Abby leaving the unit for the last time.





She was so excited to leave, but all the motion from the car and so much moving around made for a difficult day with nausea. 

We were both excited to come home to see the awesome signs the girls made for Abby.

So sweet!

Not a flattering angle for me, but I love Abby's face as she sees her balloons

Poor Em was a little worried about Abby, but we snapped the shot



We didn't leave the hospital until late afternoon, so a parade of people came to our home throughout the evening to set us up.  Feeding and IV pumps, supplies, formula, and fluids.  We had to try to get her medications because she went in the hospital on no regular meds.  Unfortunately, two of her new meds didn't come in the form ordered, so they had to be made at a compound pharmacy.  She went without them last night, but today I tracked down someone to make them.  No easy feat.  I took Hannah, Emily, Nola, and Sarah to the pharmacy, which gave us a chance to grab a quick lunch in the park while we waited. 

Emily had a bit of a rough seizure day, so she's a little tired here.  She's still struggling with seizures almost daily.  Spending so much time away from her, it didn't take long for me to realize she's still pretty fraglile.

I spent the afternoon turning Abby's "girl" room into a pseudo-hospital room.  I am completely overwhelmed by the amount of supplies we use and how significant her  needs still are.  I hope we both settle in soon.

Those shelves shouldn't be there, oh, or the IV pole.

I think it's still too new to know how well we're doing.  Abby will have blood work on Monday and I am hoping she's not dehydrated.  She's having high residuals--I'm not even sure how much because I want to keep her fluids in her.  It's complicated, but she needs every drop of what we've got her on. 

We're praying Abby has a better day tomorrow.  Her nausea and residuals need to go way down.  The good news is, overall she's happy.  She loves being home and isn't at all freaked out that Mommy is hooking her IV up.  I wish I could say the same.

Thanks for keeping Abby in your prayers as she transitions home.  If you are praying for my Uncle Frank and my neice Avery, they are both still in the hospital.  Franks surgery went well, but he needs a lot of prayer.  Avery is doing alright, but the Doctors are trying to figure out what's going on with her.
Busy family :)