Home Cerebral palsy Emily and Abby Abby's Story Contact Me

Tuesday, August 16, 2011

Fast

OK, so this has been the fastest moving week of my life..

Abby came home late Friday evening.  I don't know why it takes so long to discharge a patient when you know she's going home all week long, but that's neither here nor there.  I dropped her right off and promptly met my friends to see "The Help" and have a little dinner.  I needed a break more than I needed air at that moment.  I didn't have even a second of Mommy-guilt for going.  I'd been with her for more than a month and the other girls were going to with me non-stop beginning the next morning.  I loved being out and I LOVED the movie. 

Abby's doing relatively well.  Her color is occasionally icky and pale, she still struggles with feedings and swelling tummies.  She ran a low grade fever today--which freaked me out.  She seemed okay--definitely  really happy to be home. 

So are my other girls.  Hannah maybe more than anyone.  She really ran the house for a while.  She says she firmly understands that "babies are not love"  :)))  I don't think I need to worry about that with her.  She also feels ready for college now.  After running a house and taking care of sisters, she thinks dorm life will be a breeze; I agree. 

Emily is doing so-so.   She still struggling with weight-gain, some pressure on her skinny little hips and nausea/residuals.  I don't think her SMA syndrome is resolving very quickly.  I will be anxious to get her to a GI Dr. in North Carolina. 

Speaking of NC, we found a house.  Yaaayyyyy! 

It's a rental that I'm already itching to change but know I can't.  Saturday morning began the pack-a-thon.  I am really excited about moving, but know I'm going to miss my friends here.  It's bittersweet to leave.  Jeff's on his way home from the airport now and we are hoping to pull out on Thursday.  I can't believe how fast it's all happening.  We know we need to get Abby where we're going ASAP in case she needs a hospital, but the number of details we've handled and the amount of work we've done is astounding. 

We have a ton of stuff to do, but feel incredibly grateful for the many things that God has already worked out for us.  We're walking by faith through every single minute of the day.  Please pray that Abby handles our trip well and the million things we need to work out when we get to NC. 

Off to do even more packing :)

No comments:

Post a Comment

LinkWithin

Related Posts Plugin for WordPress, Blogger...