Quick Update

I am going to officially say that the J-tube is better for Abby.  She had a really bad day yesterday because I tried to raise the feeding rate too quickly.  That made the entire day awful and sick. 

I had to laugh at the pharmacist today--I just love her.  We were discussing Abby's feed rate and TPN.  I was saying how comfortable and good she looks when she runs at only 45cc/hr (she should have 75).  Caitlin, in her typical mathematical-pharmacy way said "well, actually, calorically it's possible for her to stay alive at that rate"  It struck me as hysterical.  She followed with, "although fluid volume wise, she wouldn't"

As I was literally laughing so hard my side hurt, I wondered exactly when I wondered onto a plane where intake is categorized by whether it's possible to live or die at a particular rate.  It's probably not funny to the rest of the planet, but to me...that's FUNNY!  :)) 

The view I go to sleep with every night. 

Abby still has tons of issues to work out.  The Dr. ordered blood work and a belly x-ray tomorrow, so hopefully we'll have a better idea of where we are.  As Caitlin so aptly put it, we might almost be at a place where Abby can sustain her own life (nutritionally) soon, so we are beginning to discuss a possible discharge date.  Maybe even towards the end of the week. 

I went home for a while today and checked on Emily.  Please keep her in your prayers.  The child is skinny--I mean scary thin.  I think she must be in a growth spurt because her muscles are really tight.  That is not a good thing at all because we really need her to gain weight to resolve her SMA syndrome, and tight muscles burn calories.  She sees the Dr. tomorrow.  I'm really glad.  I think she might be getting some pressure on her hips.  I'm very concerned about her.  I hope by the end of the week, I'll be home to take care of the little munchkin.  I miss my girls. 

I'm a little better today too.  I don't feel quite so overwhelmed.  I'm not sure why I don't, but I'm thankful. I'm just still trusting and believing there is a plan greater than my own in place here.    I'm going to sleep in a few minutes trying my best not to think about what tomorrow may bring---good or bad. 

I'm hoping to post a move date soon too.  We really need to move Abby as soon as we can after she gets out of the hospital. 

Thanks for praying for us and with us.  I can feel your prayers and I know Abby is being lifted up.  It means everything to me.