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Wednesday, May 30, 2012

Again?

Sitting with Abby, waiting to go up to her hospital room.

Yesterday, I took her to the ER for the hole in the line. They were able to repair the line by splicing it and adding a new piece. They also drew blood cultures at that time. We thought it was all good news.

Today, Emily had her Neurology appointment at 8am at the same hospital Abby was in, which is about 35 minutes from home. That went well. We are going to change her meds around---which I am really happy about. There is a brand new med on the market that has been available in other countries for years. The dr. thinks it will work well for her. She finishes school next week, so it's a good time to make changes.

She went to school, and I got home just in time to stop Abby's TPN, and start her feeds. I was hoping to get my car to the shop because the air conditioning is out. I happened to check messages before I left and there was one from the ER doctor.

Abby's blood cultures from yesterday were positive. I was shocked. Her blood work looks good, and her white count is fine (typical Abby). She hasn't had super high fevers, but like I said before, her temp was erratic, and she looked bad.

I started thinking today that if she has a low level infection going on, the antibiotics might actually help. Maybe she's not really just getting worse. What if there is a reason for how bad she looks? It gave me renewed hope that she's not just slowly dying. As much as I wish she wasn't back in the hospital (on the dreaded Benadryl/vancomycin combo), I hope this helps.

I'm having a hard time with how constantly nauseated and gaggy she is. I see it as suffering, and I don't want that for her. I just keep praying for peace for her. I pray that God would whisper to her heart and she would know His presence. I believe with all that I am that He is with her and maybe this unplanned visit is an answer to prayer.

As usual, I can't know where this week will take us. I just pray it brings Abby Grace some relief.


1 comment:

  1. Praying God's peace - the peace that surpasses our understanding - for everyone!

    ReplyDelete

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