She has an intestinal infection that they are treating, but it has been a real pain to deal with. We are working on feedings, which she's doing great with, but the infection is causing lots of GI symptoms that have kept her feeling really bad.
The j-tube went in with no problem, and is now running. She should be up to full feeds tomorrow. Yay! We are expecting her to go home early next week.
All week, doctors mentioned TPN, but thankfully, that seems to be slowly sliding off the table. Em lost 5 pounds through this. 5 pounds is huge for her. It's half of her weight gain for a year. She will put it back on but it will take time. It's really not fair for her to lose so quickly what takes months to put on.
Jeff and I are emotionally drained. Only 10 months after Abby went to heaven, we just weren't ready for a health crisis with Emily. All winter, I felt so grateful that we had a break from hospitals. Emily was so healthy, and doing better that she had in along time, but one thing happens and I am reminded how fragile she is. I am also reminded how different she is from Abby. She digests food. I keep telling myself over and over this is different. Emily keeps telling us. She handles her food just fine. She is just sick now.
She's very, very weak, and again unlike Abigail, tells us clinically that she isn't well. Her blood pressures have been low, her pulse ox drops, and her temperature runs low when she feels bad. Yesterday, all of those numbers inched up. :)
I went home last night for he first time in a week. Home is wonderful! I can't wait to be back. Just a few more days. I can make it. The girls, Jeff, and I just hung out with Emily today. We all relaxed a bit. Hannah read to Emily from "The Sweet Life of Bees." Emily loved it, and I loved time with my family together.
We're almost there. Please pray that she recovers quickly from here on out, and remember my nephew too. It looks like he and Emily might go home he same day!
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