Still home and pump trouble

We made it through the weekend, but barely. I almost brought Emily back to the hospital a few times, but hung in there.

Our greatest problem has been the feeding pump. Emily is very fragile as far as her weight goes. The constant pump issues have been extremely stressful. After the charger issue, we used the new pump. I began to have concerns about it delivering the correct rate immediately. The volume I set to be infused was about four hours worth, and it took around 6-7 to be delivered, but seemed to go faster when plugged in to the charger. At first I wasn't sure exactly what time I started it, but began to pay closer attention and knew it wasn't right.

Then it began to beep, and wouldn't run at all. I called the company, did trouble shooting, called again, was told I needed a new pump and would be contacted, then I couldn't get a hold of anyone else for 5 hours. In the mean time, I turned it back on to try again because I was worried she was off too long, thankfully it stopped alarming, but continued to deliver the wrong dose. When I did finally hear from them, they said there were no pumps available until Monday. If it hadn't restarted, Emily would be in the hospital right now. I was LIVID.

This morning, we woke up to a pump that never alarmed when the dose I set was delivered, and instead continuously pumped air into her for what we think was at least an hour. It's supposed to alarm when there is air in the line. I was in tears at that point, and still no new pump. They are our in-network provider, but we are done with them. It has been awful and dangerous for Emily. She lost more than a pound this weekend with all this nonsense.

Needless to say, this is far from over. She is still home, but would probably have been better off in the hospital. I am exhausted, frustrated, and completely baffled. I'll take Em to the doctor tomorrow for a check up, and then change pump companies.

She is so happy to be home, we are doing all we can to keep her here. She has been laughing at Sarah all weekend, because Sarah is bouncing off the walls excited about being blessed by a trip to see her BFF. She gets to fly to Alabama and spend the week with her awesome friend.

I can't tell you how much this thrills me. Hannah's best friend Kelsey was in town this week to see her, and now Sarah was completely and hugely blessed with a flight to see her friend. She is so happy, and I am grateful that my girls have something fun to do this summer, and it's not all hospitals and stress! God certainly blesses us through some wonderful friends!