Home...maybe?

Emily is doing very well. She has made tons of progress this week!

She is up to full feeds. Thank. God.

We are replacing her g-tube drainage with pedialyte, and that is going well too. She tolerates 50 and 60cc flushes with no problem. I, on the other hand break out in a cold sweat when they start them. I am so ingrained with Abby's non- tolerance of volume, it's hard to think that Emily will do just fine. She does though, and it feels like a miracle. I know it's not for her, but intimate knowledge of how very wrong things can go, leaves me astounded that it ever goes right.

She finished the antibiotics for the intestines, but none of us are convinced the infection cleared. We decided to wait and see if she gets worse. That's slightly risky, but we don't want her on antibiotics she doesn't need.

I thought going home Monday was a possibility again at the end of the week, and yesterday it was a probability, but today she didn't feel as well and her weight has been flat for two days, with a slight loss today. She has to gain weight to go home. She's been on the lipids too, which should have helped with that. They stopped those tonight. Her weight would have to be up tomorrow, and I doubt it will be. She can't tolerate peripheral lipids anymore because they are burning her veins. They are very irritating, so very site that ran them is red and swollen. Poor baby. I just can't let them run through a regular IV anymore.



So, I'm not sure if she stays tomorrow, exactly what they will do to help with weight gain. We'll see. It may just take time.

She's in good spirits and has been a real trooper the whole time. Even though getting an IV in her has been awful this time, and she's needed 2 at a time. Transport (the experts) have been putting them in. Friday it took 5 sticks for 2 IVs. She's had them in hands, arms, feet, and legs. If I had realized how long she would be here, I would have begged for a picc. Shoulda, woulda, coulda.




Overall, she is very, very close to going home! I just can't wait. I left today to get the house ready, clean some, and rearrange Emily's room and supply closet to prepare for this new way of doing things. It's still such a bummer that things have to change, but such is life.

Please pray for Jeff and I to know the right things to do for her, and that God would not allow us take her home too soon, but still, very soon ;)