Crazy

This day has been nuts...and I'm not even sure I'm on the same day.

Nope, 12:27 am; a new day.

I finally crawled into my own bed after a hot bath, and am snuggling up in Jeff's big t-shirt. They frown upon such casual sleepwear in the hospital, but it sure is comfy at home.

We all agreed to try going home early in the day, so we were able to begin working on our discharge. It was the third day in a row with no weight gain, which made us all even more nervous about this plan, and extra cautious about everything being set up perfectly at home. She also had a 100.0 temp right before we left :/ I can't even talk about her condition tonight because I need to believe that we can get through this. I have faith that we will be carried through.

Because of her precarious place, the hospital wouldn't let us go until all of the feeding supplies were in order. Along with the hospital social worker, I made a million annoying phone calls over 7 hours trying to get things in together. Keep in mind, all of this has been worked on all week. No one should have been surprised she was coming home. The agency that delivers our feeding pump and formula along with micro lipids and supplies were impossible to pin down, so we waited, and waited. Finally about 4:30, they said it would come by 8pm, so we decided to leave at 5:30 so Em wouldn't be off feeds for too long. They also couldn't deliver any formula until tomorrow. The hospital scrambled to get us enough food for tonight, but it was crazy, because of the mix she's on.

We got home around 6:30, and enjoyed a short reunion and then Emily needed to lay down. The pump finally got here at 8:45, which upset me because Emily missed 3 precious hours of feeding. As soon as the delivery guy left, I set it up and realized they sent the wrong charger for our pump. It would die around 4 am, and she would be without food again. We thought we would have to go back to the hospital. It was very stressful. I called the company and was put on hold for 45 minutes, until the call was dropped. I called back freaking out. They told us there was no driver to deliver it and they couldn't help us. I'm not even starting on that one. Jeff offered to drive to Charlotte (2 hours away) to get it. As we were waiting for them to get the proper cord, I was tearing through our supply closet. Emily had a very old pump that we own. I didn't think I had any supplies for it, and wasn't even sure if it worked, but it fired right up, and miracle of miracles I reached in a box of old feeding bags (we've had all sorts of pumps over the years), and pulled out exactly what I needed. I promise I've looked through that box many times before for bags for that pump, and didn't find any. Amazing, and completely from God.

We hooked up the old pump and saved Jeff a 4 hour drive and Emily a possible return to the hospital. At 11:45pm, it was finally all settled and I crawled into a hot bath, and now I hope and pray for sleep and a less stressful day tomorrow.

This has been C.R.A.Z.Y. It has to get better, right?