A good day

Abby had a very good day for her. She was exhausted, and looked pretty bad to us, but she didn't seem to feel so bad. She definitely had pain, but not as severe as Thursday.

I took her off all of her medicine except her main nausea and pain medicine. I thought I might have seen a pattern of seizures after I gave a particular medicine, so I backed off. I decided I could always add them back, but maybe she was having some strange drug reaction.

It's too soon to know if any of the medicines made a difference. Two days now, she hasn't had any seizures, so they were a good 2 days. I am so very thankful for that! It's a little scary, and I held my breath most of the day, because I haven't seen her like that in a while. I'm not sure what's happening, and I might be dealing with bad days better than the good.

Good days hold the unknown. What might be coming lurks. Bad days, well at least I know what to be concerned about. She is obviously struggling, and very sick, but she's also rallying some. She is the strongest person I will ever know.

~Abby and daddy cuddling


~-playing with Sarah, still her favorite!


~Abby and me, I'm not sure which one of us has darker circles under her eyes


~Emily, Hannah, and Jeff hanging out



I guess we will just wait to see what our little girl does this week. :/

Emily is doing better, and though Hannah and Sarah are bored out of their minds from being home all the time, they are doing well too!