Ugh

Abby had another seizure today (yesterday). The kids path nurse was here when it started. We gave emergency seizure meds and it stopped after 6 minutes. The rest of the day was a mix of pain and nausea.

We are holding off on starting seizure meds because she would have to go in the hospital until her levels were therapeutic. We do not want to spend the time we have left that way, so I continue to pray she wouldn't have more.

I'm just about to put my girl to bed.

That was my last sentence before Abby's next 7 minute seizure. She had a long post seizure period with what we believe included a very long partial complex seizure. It began at 9:50pm,she didn't actually fall asleep until 1:30am.

I'm not sure what we are going to do. I know we can't live with these huge, horrible seizures. This is the last thing we want for her at this point.

I dread facing this day. She might very well end up in the hospital today. She can't live on diastat, so we have to figure something out.

I think I should definitely get a second cup of coffee today :/