waiting.

Waiting has never been my favorite thing to do.  Patience is something I've learned; but I've never learned to love it. 

Before bed last night Abby's temperature jumped up to 104.  That's always scary, but what was really scary was her hands and feet turned to ice.  Her body and head were burning up, but her limbs were cold and dusky.  I called my aunt, who is a nurse and asked her what to do.  I really wanted to take Abby back to the hospital, but I think I knew she could stay home.  She said to try Motrin and if it didn't work to take her back.  Motrin brought it down to 102, but more importantly her limbs warmed back up. 

She stayed between 101 and 102 all night.  She's still looks awful and skinny.  She's lost weight, although we're trying to run her feedings at least some today. 

The initial blood culture report was negative, so she'll stay home for now.  All we can do is wait for her to get better or get worse.  We are still thinking that this is a virus.  It's just a nasty, mean virus.  Our biggest concern is that we're missing something.  I guess time will tell.  If it's a virus, she should begin to look a little better today.  I don't expect her fever to spike again because it's been 72 hours now and most virus's start to burn out after 3 days.  If she continues to run the high fevers we'll make a decision then. 

Jeff left today and one of my caregivers is out sick with a bad tooth.  Hopefully everything will settle down, since I'm down helpers.  I'll miss my goofy husband making me laugh because every time I tell him Abby's temperature, he comes up with a radio station somewhere in the country that correlates to the number.  Right now Abby's temp is 101.7 (he's gone, so I'm not sure where that would be).  She hasn't had any Motrin yet , so maybe she's on the way to getting better. 

Today I'll wait.  Yuck.:(  Wait for answers, wait for better, wait for our own messed up normal.  I don't like it, but I'm waiting.