We are...

Holding on to every minute. Loving on our girl as much as we can as we continue to try to keep her comfortable. Most days she is in pain more times than not. It's so hard to watch her go through that. I've been asked more than once why we are continuing. The simple answer is that her life is precious to us.

The time we have with her, holding and talking to her, kissing her sweet face, listening to her voice, matters to us. Every single day there are times when she is completely Abby. Every day there are many hours that we are reminded she is a very sick child. Each one of those days I go to bed asking myself if the time she spent in pain and sick is worth the smiles and family time to her..

I can't answer that. I can only say that we have faith that each day that we spend with her is a day that God preordained for her, and the first day we are not with her will be her first day with Him.



~Abby's sweet hand in mine

We are definitely running out of time, and even as I shed tears each day, peace fills in the empty places already forming in our lives.

Today, I sat with the social worker and began making funeral arrangements. I was doing well until I said "we are going to bury Abigail". I couldn't finish the sentence for a minute. Then I told her about the plot we already picked out on a mountain surrounded by great great grandparents she never knew. Last year, we began to think about what we would want. Now we are trying to plan in detail to make the last days a little easier.

Jeff is taking family leave to spend some time with her. We can't wait to have him with us everyday. It's hard for him to concentrate at work with this going on at home.

This is the hardest thing any parent ever goes through. Our greatest comfort as a family is the belief that our loss is her gain. We know that Abby will be healed and perfect for eternity. We know that we will see her again. Every day I talk to her about heaven and Jesus. I tell her how happy I am for her, and that's true. It's all those left behind to miss her I'm sad for.

Thanks for praying with us. Please keep remembering our precious Abigail Grace and smile BIG at someone for her each day.

No, in all these things we are more than conquerors through him who loved us. For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord. (Romans 8:37-39 NIV)


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