Same

I'm pretty sure I'm a broken record by now. Each week is the same roller coaster it always is. Saturday was a pretty good day. Sunday, in the top five awful pain days. She is simply sick and every day all of those around her ache through it with her. We love her so much, but hate how bad she feels.

Her Baclofen pump is being refilled Thursday, so hopefully she feels alright that day. I would love to take her somewhere else that day. I don't really want the doctor to be the last place we take her.

Tomorrow we are doing family pictures at our house and I am praying for just one Abby smile. Just one more. One more time I'd like to get that sweet grin on film. They are rare now. She smiles, but not often.

I can't imagine there is ever a good way to lose a child, but this seems especially bad. She really needs peace now. No more days with pain.

There isn't much to say that I haven't said before. Every word before now is still true. It's just very, very sad.

Please keep praying with us, and pray especially at 10:30 tomorrow that Abby would feel well enough for pictures.